The hospital adventure is finally over....a new life now begins.

Ryker is finally home. He is a little unsure of his surroundings and is loving the fact he can just sleep all the time. Its a little weird to have my family together. But we are loving every minute of it. Bailey doesn't notice much with Ryker home. But he does stare at him sometimes. We have had our firsy home health visitors. We are now setup with home oxygen, lots of tanks, and a home health nurse will come once a week. We also found out physical therapy and occupational therapy will be coming in three to four times a week and early intervention helpers will be stopping by. Ryker already has seven follow up appointments. We will be super busy the next couple of weeks. Life will be even better when ALL my homework is done, Two more projects and it's home free until January. Here are a few pictures of our adventure home yesterday.

Ryker's favorite primary nurse Jenny. We love her and miss her lots.

Our first sleepover with Ryker at the hospital. We sure didn't get much sleep.

Ryker is just hanging out to be released from the hospital

Finally we are off for home. What a great adventure!

Ryker's first bath at home;)

My favorite snugglers. Bailey and Ryker together finally.

Love at first sight. Bailey is such a good babysitter.

Ryker's Coming home!!!

we got a phone call earlier this week from the doctors. I ALWAYS get worries when the doctors call because it could be bad news. Well this call was a good one. She told us Ryker would be coming home on Friday. I started to cry which made Parker worried because he didn't hear the doctor on the phone. She said that Ryker was doing so well that it was time to discharge him this week. It was so surreal at first I didn't believe her. Its been a busy week getting things ready, being trained with all his oxygen, feeding tube, and heart stuff. Its becoming more real. On Tuesday Parker and I were excited to go up to Idaho to get the rest of Ryker's stuff. As we were driving, we hit a patch of black ice and flipped the truck. Its totaled. We are ok and alive. We were very blessed. I truely felt angels around us at that moment. RYKER REALLY NEEDS HIS PARENTS. It was so scary. Luckily, we had our amazing Idaho family the Thrialkills come save us. We sure appreciate them. It has been a very sore couple of day, but we have to keep going with Ryker coming home. Now its TURKEY DAY! Happy Thanksgiving everyone. We have alot to be thankful for this year. Parker and I will be staying at the hospital tonight with Ryker to get to know our equipment for home. Then bright and early tomorrow he will be home!!! I am so excited and nervous, but I know Heavenly Father will be there to help us through. He has been there and blessed us the last four months. I know He is aware of us and Loves us even if I get frustrated with him. He is always there. Enjoy your thanksgiving. Loves!!!

The Totaled Truck

Ryker's Last Hospital Bath

Grandma Sheila Hanging Out For Us After The Wreck

Ryker Is Showing Off His Go Home Oxygen

Ryker has ups and downs

Since the last post, Ryker has been struggling with high blood pressure. The doctors did an ultrasound of his kidenys to make sure nothing was wrong with them. That went well. They gave it a couple of days to see if his blood pressure would go down and it sure it. He has been soaring along the last couple of days. He went from 5 liters of high flow oxygen to 2 liters in three days. He is currently on 2 liters. Tomorrow they are going to transfer him to regular flow oxygen. Which is something he can go home on. Today Ryker is finally up to full feeds. Now we will be transitioning to bolus feeding over 2 hours. Ryker also was a brave boy today, he got his pickline IV out. He is almost free of all the cords. I am a super happy mama. We are finally on a transition step of going home. YEA!!!!

Yesterday,  Parker and I were sitting in our new ward for church. We both felt at the same time that this is where we are suppose to be. It was a very overwhelming, very powerful experience. It was like something I haven't felt since my mission. Heavenly Father is truly blessing us.

Parker's last day of work was on Friday. That was a great feeling for both of us. He has had some problems with his ex boss. There was a big blow up on Friday and Parker had to leave his job early. So because of that, poor little Ryker doesn't have health insurance in December. That was a major stress in my life. Luckily, I talked to a social worker and an insurance broker. I got it taken care of just in case he has to stay until the end of December. I guess small businesses don't have to offer cobra. I know Heavenly Father is looking out for us so everything will work out.

Well friends and family here are your updated pictures. He is so stinkin' cute!

Ryker getting his pickline out!

Ryker is Pickline Free! And so much more happy!

Finally on High Flow!

well Ryker finally made it on high flow oxygen. Thank goodness! Its on high settings of high flow but at least we can start weaning him more. That was a long three weeks of intubation and CPAP. He is being fed continuously right now but only like 3ml of milk an hour. We are working up to more but poor baby and his reflux he just doesn't like the acid feel. I am still hopeful in two week he can come home. At least that would be a mom's wish.
For those of you that don't know, my dear husband found a new job. We will be moving back to Utah. I am super sad to leave behind our amazing Idaho family, friends, ward, and house. It is sad for me, but Parker is excited to finally be with Ryker and I. And he is very excited about his new job and the opportunities he will have in a bigger company. And our adventure moves forward. I believe Heavenly Father likes to pile not just one trial load, but several. I am not sure what we are suppose to learn from the last four months and the few months to come, but I sure hope we learn it. I have had spiritual confirmation we need to move to Utah, but I am super sad about it. Exciting for the grandparents I am sure. They all wanted us to come back. Here's to hopefully a great adventure and many blessings.

Ryker is so cute these days!!!

Well we had our esophagram today. It went well. So his esophagus doesn't have a hole anymore, but it's not completely healed. There are still signs of injury. So he won't be able to be feed orally for a while. Swallowing will be hard a challenge. But he can be fed through the gtube so we started that tonight. He was having a great day today. Smiling and playing with the nurse and I. It was very fun to see him back to his normal self. I even caught a cute Ryker smile on camera. Yea!!! Hopefully he tolerates feeding. It will take a while to get up to the normal amount of feeds. They are also concerned about his digestive system not working properly because he hasn't been feed for a while. So let's pray all goes well this week. We are still working on oxygen, still on the CPAP machine. Hopefully we can start weaning him off soon. But I think feeding him is the goal this week. Pray all goes well.

Ryker is finally a Rockstar again!

Well Little man is moving forward. He is still on a cpap machine, but it's getting a little easier to breath. He is getting a esophogram tomorrow morning to make sure everything is doing great. Afterwards, hopefully he will start eating again soon. His bowels are finally waking up. He did a massive poop yesterday for the nurse.  I am now able to snuggle him like it was. I stayed at the hospital for a long time last night just because I love to cuddle him. He was his cute little self last night. Smiling and playing with his little tongue. A happy kid again is always nice. YEA! I did do some video of the little man doing his tongue thing. It's pretty cute. Hopefully you enjoy it. We are still praying he comes home for thanksgiving. That would be the best thanksgiving gift ever!

Finally a step forward!

Tuesday was Ryker's surgery day to remove the stent. Parker thankfully was able to be there. The surgeon told us his esophagus is healed. No more hole. So they extubated him. Ryker is now on a cpap machine. It might take a while to get on track for high flow. He is off morphine and not sedated anymore. His esophagus and nose is inflamed and sore, but everyday he is improving. Finally a step forward. Hopefully no more steps back.

Update on post surgery

Well folks Ryker is trying to recover from surgery. He is still sedated and intubated. The doctors informed me today that he will be like that for another week. I guess they are a little nervous to take out the stent on Thursday so they are waiting until Tuesday. I personal feel better about waiting to make sure it is all healed. I don't want anymore stupid complications during surgery. Ryker is struggling with being swollen again with all the fluid being pumped into him. It looks very painful. They are trying to help him pee it off with medicine. He peed off 250 grams of fluid today. He did get his catheter out today. So he is now peeing again like a big boy.  I haven't been to the hospital the last couple of days because it's too hard to see my little baby in the state he is in right now. I don't like to see him suffer in pain. The doctors keep giving him morphine for pain, but sometimes when I look at him it seems like it not helping much. Thank goodness he will not remember any of this. Poor little guy. The ENT doctors are thinking they will just do the nose surgery the same day as getting the stent out. So we will have a while for recovery. Someday he will come home, but it's looking like not for a while. Here is the sad little boy's face for you.

a couple days after surgery and more information

first off I know some of you are getting offended or concerned we won't respond to questions about Ryker. But please remember this is really hard for us. We are dealing with it the best we can. So if we don't answer you, remember we still love you. We are just taking this last "hiccup" really hard. Ryker is a sick and injured baby right now. I didn't go to the hospital yesterday because I was so mad at the situation. Frustration and tears have been my world the last few days. Its been nice to have distractions such as game night on Halloween, trick or treating, and the Home Free concert tonight. But the frustrations and tears are still there. Auntie Tami came with me to the hospital today. Ryker needed a blood transfusion because his own blood didn't have enough oxygen which was wearing out his little body. He got another central line and has been on antibiotics for infection precautions.  His blood has been drawn many times the last couple of days. Yesterday his breathing tube in his mouth was not working properly. His trachea is a very tight fit so they put in a breathing tube through his nose. He will be sedated for a week on morphine and other sleeping aids. They don't want him to move and mess up the stent in his esophagus. So no one can hold him. He has to be very still. They are looking at a week before they check the stent again to see if the esophagus is healed. Then in two weeks or so they are going to fix his nose. So December is a good goal for us now. Ryker will be grown out of all his newborn clothes by the time he leaves the hospital. so sad. Another update will await in a couple of days.