Tuesday, December 30, 2014

Ryker's first Christmas!

We have made it through all the holiday parties and trips to Idaho. Finally some peace until surgery in three weeks.  Ryker got to experience lots of family events and friends the last week. He even got to check out his house in Idaho and finally see his room that will never be his. Sad! But overall it was fun in Idaho and we sure do love the Thrailkill family. The parties were a little overwhelming for him. He has slept so much this past week due to all the excitement of christmas, parties, and santa. Thanks to his amazing Aunt Jen we were able to attend all the family gatherings without exposing little man to other little humans. Hopefully he stays well for surgery. The last week Ryker has improved his head turning. He was struggling with turning his head to the right side, but with a long week of exercises we accomplished it. We are also working on supporting his head, which he is doing great on. He is now able to sit in a bumbo chair with out any help from me. He is not sure if he likes the chair, but little man is getting use to it. Ryker has found that his left hand is so much better to suck on then his binkie. I am a little worried he will find his thumb and that will be another thing we will have to overcome.  We went up on milk milliliter intake by the bottle. He is now able to eat 15mls which is almost a 1/2 ounce. Ryker has been struggle with the bottle the last couple of days. The milk has found it's way into his nose when he breaths and sucks, so I am just praying surgery will help with this situation. We also had his little baby blessing on Sunday. It was such a nice blessing to have before surgery. Now that all the parties and holidays are over, we are getting nervous for surgery. I know it will be worth it. It's going to help so much. I just pray there is no complications during it. Here are a few pictures to keep you busy. Here's to another great week! Have a great new year!








Friday, December 19, 2014

Ryker is loving home!!!

WOW! it's been a while since I have updated this blog. Well since I have been living with my brother in law I have to play by his rules. He turned off the internet so I have been unable to post anything, but my loving husband got me in touch with internet powers now so we are back in business. Where do I start. There has been a lot happening lately. Ryker has had many follow up appointments with speciality doctors. The first was the ENT doc for his nose. We were informed that his nose has gone worse so we will be doing surgery next year on January 15th. Yes, more hospital time. But hopefully no complications this time. So the heart doctor told us she wants to do another Echo on his heart during surgery. I guess he has Pulmonary Hypertension. Pretty much high blood pressure. They want to make sure his PDA heart issue was completely closed up. Another fun, but not so fun event happened. Ryker is two months behind in vision. He needs baby glasses. We got him sized and fitted for them last week. We are just waiting for his prescription lenses to be place to he can have them ready to go. Hopefully by Christmas he will have his specks!
Last weekend was a scary weekend. We made a trip back to the hospital. Ryker couldn't breath and was turning purple and limp. I was a worried mama thinking he might have to stay in the hospital for much longer, but after an emergency room visit, ambulance ride to Primary Children's, and more doctors found out he had a block nasal passage. After heavy duty suctioning we were good to go home. Thank goodness it wasn't a long stay.
We also had family pictures this week with the Allen side of the family. Baby looks pretty cute in his awesome outfit. We also had some fun visitors this week. Grandma and Grandpa Allen came up and Aunt Jen and Uncle Godfrey. Ryker loved his uncle Godfrey. Snuggled right into him. It was pretty dang cute!
The last couple of weeks we been working on muscle tone and exercises. Ryker is able to move his head side to side now and is learning to hold his head up. We also have been working on sucking. Occupational therapy has had him suck on a tootsie roll and drink 10 ml of banana milk. He enjoys every minute of it. He kicks his legs and just wants every bit of the tootsie roll. It's pretty funny,
Bailey has finally understood that Ryker is here to stay. He loved trying to be close to him. I am not too worried about Ryker being over powered by the dog because a couple of nights ago Bailey wouldn't let anyone near Ryker. He would just growl at everyone even me. Very protective puppy. I knew Bailey would be good pet therapy for Ryker Man. Well Christmas is next week. I can't wait to share Ryker's first Christmas with you all. Until next week. Thanks for all the love and support from everyone. We appreciate it!.  Oh PS since we totalled the truck, we got another family member. Check out the new and improved PJ Allen Vehicle. Yes it might be very mommy, but that's what you get when you have a baby in the household. Ha


















Saturday, December 6, 2014

One week home!

It's been a great week having little man home with us. He sure is taking to the sleeping all day long and being "normal" baby. He did get shots the other day.  Poor little guy is sore and more fussy. Hopefully it passes soon. Luckily for mom and dad, Ryker sleeps pretty much all through the night. I feel really spoiled that I get all eight hours of sleep. I sure do love being Ryker's mommy! He is finding that not being bugged while he is sleeping is the best thing ever! Also, Ryker is loving his mamaroo that Grandma purchased for him. That is his favorite spot to sleep. Little man still has is ups and downs. We are struggling with his congestion in his little nose. Sometimes he is so congested that he can't breathe and we have to turn up his oxygen to help him out. Hopefully he can get over that sooner than later. Feeds are pretty easy. We have even trained Aunty Tami to help out with his feeds. Sometimes mom needs a break even though she doesn't want to have one. Tami and Tanner have been amazing! We sure do appreciate all they do for our little family. They are so sweet to clean out their basement laundry room for us to use. Freezer and dog space was much needed. Thanks again T's we love you!!!
Ryker had is first Physical Therapy and Occupational Therapist appointments this week. He got his work out. I am not sure if he liked it, but we will get the hang of all the training that will be taking place the next couple of weeks. This week has been busy trying to get all the follow up appointments set up. I sure do need a schedule so we can get Ryker moving along. I was very pleased with his Occupational Therapist and his pediatrician. They are both awesome! Next week the OT will be helping Ryker learn the sucking and swallowing motion with Tootsie Rolls and Slim Jims. That will be interesting to see how Ryker like those two flavors. We are also going start again with bottle feedings. He is going to be back on his yummy banana split milkshakes. Here's to another great week with Ryker roo home for good.