Wednesday, March 11, 2015

Wow! its been a month.

Time has really flown this last month. With the crazy weather warm one day snowy the next. Utah is sure a crazy state when it comes to weather. Ryker has been very busy with therapy. We have had vision therapy, occupational therapy, physical therapy, and massage therapy. Early intervention has been great coming to the house and getting him moving around. I have seen so much progress with little man. He is wiggling around tons now, lifting his legs trying to roll over. He has grown two and a half inches in length and is finally 12lbs. He is growing out of all the little new born clothes and in big boy clothes now. It's so cute to see him developing into a little person. Parker and I have talked about sometimes it's sad not to see him on the same level as other babies, but at least he is growing. We went to the geneticist today and found out that not only does Ryker have trisomy 9p but a partial trisomy 9q. We don't know how it will effect him, but there is no other cases with the same gene makeup as him so once again he is our little mystery.
Our house is another story. We were suppose to move in this weekend, but something went wrong with the appraisal so we won't be moving in for two more weeks maybe. So we might be stuck with the T's for a while longer. If this doesn't work out with the house we will be looking for a rental. I am sick of not having my own space.
Life has been crazy. My mom is being released from rehab today. I feel bad because I am not able to help her like I wish I could. I don't know what she will do when Josh moves out. Sadie and him have been amazing. I am truly grateful for them. They have been a saving grace. I don't know what we would do without him.
The last couple of weeks have been stressful. I even had a nervous breakdown. I had to get away for a while. I went and saw my mom at the rehab center. She told me Heavenly Father didn't send Ryker to my family to break us up. I was a little amazed my mom would say that. She isn't a very religious person, but it out my heart and mind back into perspective. I know Heavenly Father wants me to do this, but more often then not I feel I can't do it. If Ryker was a normal baby with normal baby problems that would be different. But it's the normal baby problems plus the doctor appointments and the therapy and the gtube and the oxygen and all the trisomy 9 problems that come with little Ryker that is hard to handle. I am not perfect but I am trying. I just wish life would get easier at some point. I am finally realizing this is how it's going to be the rest of my life. It's not going to vhange. Sometimes I feel it's not going to get better. And that's where I am right now. I know things will eventually get better, but I am sick of being a special needs mom already. But I know that's what , I am suppose to do so I just keep going. I love Ryker too much to quit!
Many of you might be wondering how school is going. Well I am still trudging through it. My grades aren't up to my Jessica standards, but it's ok. I am taking a summer break just to get somethings off my plate. But I will be going back in the fall. Got to get it done and all. It will be nice to say I am a master graduate. Well folks that enough for now. Hopefully it won't be a month before I write again. I will try to do better. Loves!!!

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