Home finally! At least for a little while.

We are all home finally from the hospital. The doctors threw their hands up in the air after all the labs, test, MRI's, EKG, EEGs, etc. We even had a sleep study done on Saturday, but we haven't got the results back yet. I hope its good. All the doctors and nurses keep saying this kid needs to have a tracheoscopy meaning a tube placed in his neck to help him breath. Every time they tell me he needs one and all the conclusions come back he needs one, I know deep down in my heart my son doesn't need one. I feel my Heavenly Father testifying to me not to place one in his little neck. Just like I know he doesn't need to have a knot tied in his tummy for his reflux. It's been a hard decision for me just because all the physicians tell me one thing and my heart says another. I have cried for the last three days wondering if it was the right decision. It's been stressful. Since the doctors didn't know what to do for Ryker they decided to send us home. The first couple of nights were rough. Ryker was stressed out and didn't want to sleep. With the nursing staff waking him up every two hours he got into the habit of not sleeping. So we had a mad baby on our hands. Then every time he would fall asleep he would do his little no breathing spells and his oxygen level would go down. It was frustrating because we would stay awake and not get any sleep. I was to the point of giving up. I even had Parker give Ryker and I blessings. It is nice to here blessings and promises once again, but when you are fed up with everything and not have blessing fast enough was just not helping the situation. I found on facebook this great talk from Elder Holland. It was a Mormon message. The quote that really got to me was this:

"Don't you quit. You keep walking. You keep trying. There is help and happiness ahead. Some blessings come soon. Some come late, and some don't come until heaven but for those who embrace the gospel of Jesus Christ they come."

I started to cry and pray even harder after that. I wanted to give up. I love my son dearly, but sometimes I can't take the stress of being his mom due to all medical problems. Sometimes it's too hard. But with that message I knew I could keep going. I can do it. It's not going to be easy, but it's Ryker. And I love him. Heavenly Father promises me that he is always there and He will always help. If I just keep swimming he will come in and save me when it's too hard.

At least little man came home for my birthday. It was nice to be able to be home and just be a family again for my birthday. We stayed down stairs all day while the family upstairs partied. It was nice to have peace and quiet with no doctors or nurses tell me what I can and can't do for my son.

Today has been a better day. After all the praying and crying and stressing I feel comfort. Ryker hasn't had any spells of no breathing. Knock on wood. We figured out that he likes to sleep on his back on our bed. So last night I slept on the floor so he could get good sleep. I really like happy babies so I sacrificed. Hopefully this will keep up. I am super afraid what will happen if it doesn't. We still haven't got back test results for the sleep study. I am worried about them anyway and kinda don't want to know. But the doctor did call us to tell us that his EEG came back mildly abnormal because of his syndrome. I am not sure what that means for developmental reasons, but at least it's not severe or moderate.  I guess it will still be a mystery.

Ryker also had his six month shots this week and we had a urology appointment. I found out that once again little man will need surgery. We will be doing it in June. He is having problems with his little man parts. They need to fix them soonish or there is a chance he could develop cancer when he is a teenager. Once again the journey of Trisomy 9p moves forward. Some day I hope we can have some type of normal, but 2015 might not be that year. ha

One good thing about the hospital. Ryker learned to keep his binki in his mouth with Grandma's help of course, but now he is a pro!

The Nurses made Ryker a 6th month birthday sign for good luck!

The sleep study....How can anyone be tested with all this positioned on them....NO wonder he did poorly...Plus his stents were clogged. DUMB!!!

Grandma Julian in Rehab snuggling Ryker after he got out of the hospital. Grandma sure missed him.

Ryker is loving his bumbo chair now that he can breath better. At least one good thing came from nose surgery. It actually made it so he could breath. Ha!

The first time we brought Ryker home he hated his cradle. We had to put him in a swing thing call the Mamaroo. But now he can't sleep in the Mamaroo. He like his back too much. Ryker is finally enjoying his cradle. Yea!!!