October 17-October 23

This is going to be a long post. A lot has happened. Well after the GI doctor told us Ryker had to wait for a Gtube, we progressed forward with the transition of weaning little man off of the NJ tube. I was very nervous knowing his past problems with reflux and aspiration. We first started with continuous feeding on the NG tube. Ryker mastered that in two days. I was a little more comfortable until they moved to feedings over two hours. He did fine. No signs of reflux. Thats good, but then over this weekend, since I decided I needed a break, they doctors decided to push my sweet boy too fast to over an hour feeding. He is now showing signs of reflux again. I have voiced my concern, but they said the GI doctor won't put a Gtube in if he can't tolerate it. So here we are reflux, sad baby, and frustrated mommy. The last couple of days have been frustrating because the GI doctor has been out of town. Poor little Ryker is sick of the NG tube. He just keeps pulling it out. Finally tonight I got to talk to the GI doctor. GTube is a go for sure for monday or tuesday. The date will be set tomorrow. Well the next issue moving forward is his breathing. So we found out that his struggling is not his lungs. Not only does he have a narrowing of his nostrils, but the doctor thinks he has tracheomalcia. here is a link if you don't know what it is. http://www.nlm.nih.gov/medlineplus/ency/article/001084.htm

So with the gtube surgery the ENT doctor is going to do a scope procedure and CT to see Ryker's skull structure. If anything come of it, he will have surgery on that as well monday or tuesday. Wish us luck. Here are some updated pictures.